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cant cry any more it hurts refussed again

kphorrox

New Member
:cry::cry::cry::cry::cry::cry::cry:i plucked up the courage today to pct in which they said a letter is in the post saying no again as i have no co mordabilities it is so un fair.
they also said i had a bmi of only 43 what do they want it to be and i told them its not its higher as im 24.3 and 5ft 10 inches. they said i cant appeal it would be a waste of time as the decision has been made. ive also been refered to weight clinic in penworthem so i chased them and they said the waiting list is at least 18 weeks .
i just dont know what to do now:cry::cry::cry::cry::cry::cry::cry:
 
:raincloud: Oh Kerry, I just don't know what to say. You poor thing! I really feel for you. Any chance of moving house to a different PCT?:grouphugg: I really hope you resolve this. Big hug, Zxx
 
oh kerry im so sorry to hear this news, i agree with zeta about moving to a better pct area as this may be a chance to get funding. its a long shot but maybe worth looking into if you cant afford to go private xxx
 
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They say dont appeal - bugger them - appeal and write a really long letter explaining why you should have it and mention depression etc. They just dont want the hassle of more paperwork. Swines
 
I think it may be a bit drastic moving house. Have a look at private. You can get loans and credit cards etc to cover the cost. It would cost less than moving house.
 
what is there bmi guidelines ? as my bmi was 43 when i was banded.
 
So sorry to hear this you must be so disheartened.
I would agree if you could go private it would be better and you could have it done within a few weeks from now. Hope it works out for you. x
 
If your figures are correct, ie weight 333lbs (23 st 11 lbs) and 5'10", then your BMI is 47.8.

How many times have you appealed and has anyone else ever done the appeal for you, or have you done it yourself? You should be able to appeal still, even if they tell you that you can't.
 
So so sorry about your news you must be heartbroken I have a friend i the same position she is waiting on her third appeal letter being sent this week and I am so hoping that it is good news for her. It does seem so unfair that the PCTs vary from area to area in spite of the criteria being the same generally. I know they cant just hand the surgery out on a plate, but if genuinely obese people are prepared to undergo surgery to enhance their health and life quality then there should be more resources for this to happen.

Im with CAroline, of course you can appeal although they seem to have already made up their minds already. However an appeal is supposed to be read by a different set of people each time, so worth remembering this dont let them just brush you off. As for 'only' being BMI 43, the guidelines are over 40 for people without comorbidities so you still meet that criteria.
I agree with the others that moving house is drastic, but so is the surgery. If you cannot afford to think of having it done privately, then a PCT is your only hope. Again I am really really sorry and understand your upset and anger
Lot of BIG HUGS to you

Jay xx
 
Sorry to hear this - I know I would have had no change getting it on NHS in my area so I'm putting in a credit card for now - I know I have the money coming to cover it at some point over the next year (fingers crossed) but I can't wait.

It sounds extreme doing something like that but sometimes you have to take a risk.....I know not everyone is in a position to do something like that - some providers offer finance plans - they may be more likely to accept you than a bank ?
 
i havent yet as such appealed i and my doctors just keep writing letters to them any ideas what to write would be appreciated thanks for everyones support and sorry for my rants but im sure everyone knows how i feel
 
I am so sorry. I would write to the PCT and find out exactly why you were refused versus the NICE guidelines. The BOSPA website has some great information on how to proceed if you are refused. (((HUGS)))
 
and to make things worse i got on the scales to work out my bmi and i have put on 10 pounds
 
Hi there kphorrox

Sorry to hear of your difficulties, no wonder you are stressed.

OK firstly are you under central lancashire pct?

If so......

2.2.1 Inclusion Criteria
People who are severely obese will have surgery to aid weight loss only after
they have had a full assessment by the specialist and other healthcare
professionals involved in their care (
Appendix 1).
Surgery should only be considered as a treatment option for people with
severe obesity providing all of the following criteria are fulfilled
1:

The individual is considered severely obese according to 2.1 above;

The individual has been receiving and complied with a weight
management programme in a specialised hospital obesity clinic or a
community-based equivalent, provided locally if possible, within 12
months of a request for surgery having been received.

There is evidence that appropriate and available non-surgical measures,
which may include commercially provided weight loss support
programmes, have been adequately tried for a period of at least 6
months but ideally 12 to 18 months but has failed to maintain significant
weight loss (i.e.
10%); prior to the request being received.

There are no specific clinical or psychological contraindications to this
type of surgery;

The individual is generally fit for anaesthesia and surgery; and

The individual is committed to the need for follow-up by a doctor and
long-term compliance with an altered lifestyle and dietary habit postoperatively.
Clearly there is a potential to create a perverse incentive to fail a weight
management programme as a route to bariatric surgery. In view of this,
referrers should be able to clearly identify the causes of failure and
comment on any likely impact these factors may have on enduring postoperative
weight loss and compliance with an altered lifestyle and dietary
habit.
Surgery should only be offered if:

The above criteria are met to the satisfaction of the patient’s GP and/or
Specialist Medical Obesity Clinic, the PCT responsible for the patient and
the provider of the surgery;

The person (and their family if appropriate) with severe obesity has
discussed in detail with the clinician responsible for their treatment (that
is, the hospital specialist and/or bariatric surgeon) the potential benefits
and longer-term implications of surgery, as well as the associated risks,
including complications and perioperative mortality;

The patient has realistic expectations of the outcomes of surgery, and
understands that long-term commitment and dietary compliance is
required;

The patient understands that cosmetic plastic procedures to remove
excess skin folds will be at the discretion of their local PCT and that local
criteria may apply to access such interventions. It should be noted that
following surgery, maximum weight loss occurs one to two years after
the procedure;

The provider of the service has undertaken a comprehensive, multidisciplinary
assessment of the individual; and arrangements have been
made for appropriate healthcare professionals (e.g. a psychologist or
appropriately supported, supervised and trained nurse with experience of
cognitive behavioural therapies (CBT)) to provide pre-operative and
postoperative counselling and support to the individual.

The choice of intervention is made jointly with the person, taking into
account:
- the degree of obesity.
- co-morbidities.
- evidence on short term and long term outcomes of Bariatric surgery.
- different techniques available and their relative efficacy.

- facilities and equipment available.

- experience of the surgeon who would perform the
operation.
- compliance with post-operative follow up and dietary
requirements.
The decision at the end of the day lies with the patient who should be
provided with all the relevant facts.
Bariatric surgery is recommended as a first line option for adults with:
a BMI of 50 kg/m2 or greater in the absence of co-morbidity.

A BMI of 45kg/m2 or greater in the presence of serious co-morbidity
which may be amenable to treatment if obesity is modified by surgery.
These conditions include:
- Type II diabetes, especially severe, uncontrolled diabetes;
- Severe obstructive sleep apnoea and obesity hypoventilation
syndrome;
- Obesity related cardiomyopathy;
- Clinically unmanageable hypertension;
- Established coronary heart disease; for example a history of
myocardial infarction in the past 6 months;
- Cerebrovascular pathology, for example a history of transient
ischaemic attacks or stroke (if good functional recovery) in the past
6 months;
- Obesity related pulmonary hypertension;
- Other co-morbid conditions which have been agreed by the PCT as
exceptional, for example Pickwickian syndrome, on an individual
patient basis; and/or

a condition which requires surgery at the same time as bariatric surgery,
based upon clinical need and urgency for such surgery (e.g. hernia
repair, cholecystectomy or severe gall bladder disease);

a condition which needs surgery or complex technological intervention as
soon as possible after bariatric surgery (e.g. hip or knee replacements).

a condition for which surgery is withheld until weight loss is achieved
(e.g. spinal pathology or awaiting IVF for infertility).

a condition that although surgically treatable is at high risk of recurrence
in the presence of obesity (e.g. incisional hernia).
Only referrals meeting these criteria should be funded by the NHS. No
referrals outside of this process will be approved, including direct GP or
consultant-to-consultant referrals.

NHS Central Lancashire will consider requests for surgery in regard to
patients who meet the NICE criteria but fall outside of the priority groups
referred to above.

When you write your appeal, refer directly to any of the above that apply to you and quote it as being from their Bariatric surgery policy.

Also in the letter, clearly write what attempts you have already made at losing weight and how many times you have lost and gained more each time.

In the meantime also ask if your GP can refer you for sleep study tests to see if you have sleep apnoea. If you do this is a reason to have surgery. Also have you had tests for diabeties, thyroid at all? if not then ask for them also.

I see you are in Preston but from what I can gather, it is central lancashire pct who do the bariatric funding.

Also, is it your gp who has applied for the funding on your behalf or have you already been referred to a surgeon and been seen?

If your gp has applied for funding maybe you can try it another way by asking him to refer you to a baraitric or upper gastro intestinal consultant direct.

Wishing you all the best, have a good ole weep, sleep then get up tomorrow with your battle boots on girl and get writing.
 
Oh and forgot to say, in your appeal make sure you put the correct height weight and bmi. when quoting your bmi also refer to their own literature.
 
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