Ehlers Danlos Syndrome

[Su2ie]

Thought I would start a new thread to find out if there were many people here with EDS.
I'm very early in the process, have attended a seminar and have my first proper appointment on 14th nov.
I have a few reservations about the surgery because of the EDS and was wondering of anyone had any experience of this??
Would be great to chat with anyone in similar situations....
Suzie

 

[BigEll]

my sister has this!

 

[widdershins]

My best friend has EDS! Shes not had WLS, but lots of sugery on her knees - snapped as a child doing gymnastics. They didnt know she had EDS, and that led to loads of surgery...the scars stretch, but Im sure that your team will be aware.

 

[Su2ie]

I hope so but it's a bit if an odd condition that doesn't neatly fit into one category of medicine and everyone has different symptoms/problems!
I'm hoping wls will ease the burden and therefore the pain on my joints!
Looking forward to discussing it with them though, just hope they don't dismiss it as unimportant as some medical professionals do!!!