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Leaking like the Titanic..
- Thread starter scooter81
- Start date
-
- Tags
- leak sleeve gastrectomy stent
amanda577
Active Member
I have just read through this whole thread, and I am absolutely stunned and horrified at what you have gone through!! I am going to add my good wishes and positive thoughts for you, and just hope and pray that this revision surgery sorts things out for you so you can get on with your life.. I admire you so much for your courage and your perserverance in the face of such awful incompetence..
GOOD LUCK!!!!!
GOOD LUCK!!!!!
scooter81
Walking Disaster Area
thanks everyone for your love, prayers and support. trying to do this by my mobile so it may be in a few parts..
wednesday 10 min before due to goto theatre surgeons came 2 c me ~ change of plan! didnt want to do open surgery but to try take stents out by endoscopy so theatre wasnt ready as didnt have the endoscopy equipment. had to wait till lunch time.
the new plan was take stents via endoscope check leak size. if no change they would sew bowel to leak site by keyhole, if this couldnt be done theyd open me up.
went to theatre couldnt canulate my arms so wound up in my feet. woke up bout 3.30 and the retched stents are out! the 24/7 sickness gone. removed by endoscopy. have pain in left side where they lanced prev drain site to remove fluid collection (puss).
im still leaking
however leak site is now maybe 2mm. they want to leave for upto 3 mnths to heal naturally keeping me nil by mouth. ive refused blankly. have to goto endoscopy to see if they can glue and clip next week. i have also got MRSA
wednesday 10 min before due to goto theatre surgeons came 2 c me ~ change of plan! didnt want to do open surgery but to try take stents out by endoscopy so theatre wasnt ready as didnt have the endoscopy equipment. had to wait till lunch time.
the new plan was take stents via endoscope check leak size. if no change they would sew bowel to leak site by keyhole, if this couldnt be done theyd open me up.
went to theatre couldnt canulate my arms so wound up in my feet. woke up bout 3.30 and the retched stents are out! the 24/7 sickness gone. removed by endoscopy. have pain in left side where they lanced prev drain site to remove fluid collection (puss).
im still leaking
however leak site is now maybe 2mm. they want to leave for upto 3 mnths to heal naturally keeping me nil by mouth. ive refused blankly. have to goto endoscopy to see if they can glue and clip next week. i have also got MRSA
scooter81
Walking Disaster Area
im greatful stents are out and can see immediate benefit, its been nicew to not have syringe drivers, IM antisickness etc.. but i am very dissapointed yet again. the point of the procedure on the day was to get stents out, fix leak.
i have a new nj tube 1.2m long with a further 60cm coiled and taped to my face and am being forced to have peptisorb feed despite intollerance. its either this or having a central line and TPN again, and the nj tube will not be removed.
with regards to treating the MRSA i have been given hibi scrub for daily showers ~ironically ive used it every day since 24/7/12 and even use it to clean the shower head and seat before use on me. also have some bactroban cream for up my nose.
the longer im here the more infections i get.
ive given them until friday next week (15th) to get me out of here drinking and no nj tube before i goto the media or commence legal proceedings. aware if they cant fix me to send me where they can
i have a new nj tube 1.2m long with a further 60cm coiled and taped to my face and am being forced to have peptisorb feed despite intollerance. its either this or having a central line and TPN again, and the nj tube will not be removed.
with regards to treating the MRSA i have been given hibi scrub for daily showers ~ironically ive used it every day since 24/7/12 and even use it to clean the shower head and seat before use on me. also have some bactroban cream for up my nose.
the longer im here the more infections i get.
ive given them until friday next week (15th) to get me out of here drinking and no nj tube before i goto the media or commence legal proceedings. aware if they cant fix me to send me where they can
scooter81
Walking Disaster Area
the other good thing (so not all doom and gloom, and ending on a happier note) is my weight before going to theatre was 101kg and Im still alive with fantastic support from you guys, my other friends and my family
just one final thing.. its something when u walk from the anaethatists room to the theatre table and when u walk in get "hi becky! wow! u lost ALOT of weight!" made me forget how scared i was momentarily. i even had a visit from one of the theatre staff today to just say hi and chat while she was on lunch break and told me to keep my chin up. helped restore a bit of faith that someone in this hospital gives a dam
just one final thing.. its something when u walk from the anaethatists room to the theatre table and when u walk in get "hi becky! wow! u lost ALOT of weight!" made me forget how scared i was momentarily. i even had a visit from one of the theatre staff today to just say hi and chat while she was on lunch break and told me to keep my chin up. helped restore a bit of faith that someone in this hospital gives a dam
stubad
New Member
my god that is so awful, i am praying for your speedy recovery and that once its all over you can get what you deserve from the initial surgery. you never expect to be the 1 in 200 but when it happens, its like a cascade of other problems come with it, me and my partner have had a similar sequence of bad luck to do with her health but we are hopefully over the worst of it now, thank God, please update to tell us your progress xxxx
Tandydadder
Member
Oh my god..... I've just read this whole thread. Scooter, I think you're amazing, and thank you for being so honest. It's good to hear the cons as well as the pros... Really hope you get sorted out. Xo
chrisa
New Member
God Bless you Scooter, you are still going through the mill and coming back again, think it is time to take it further you have been treated abominably, absolutely disgusting it needs sorting and now you can't be told to wait any longer they wouldn't let a dog suffer so why a human, I am so proud of you the way you are coping with it all, not sure I would have been as strong as you have well done girl you give them hell. xx Hope all is resolved, soon very soon, like yesterday. xx
scooter81
Walking Disaster Area
Hi everyone, a quick update from my moms..
I was told last week that I would be advised today of what the next step would be with regards to sealing the leak off and getting me home drinking.
Today I was woke up by a member of the team and 2 jr doctors behind him like ducklings asking me why I was still in the hospital, I should be at home. Despite being told Friday that I would learn my fate with regards to gluing and clipping today Ive been discharged despite my protest, and told they will see me in outpatients in a few weeks. Needless to say I went off like a rocket.
Ive been told that the endiscopy guy cant do it this week because it takes time to plan this procedure - it has to be done in theatre. They have to book theatre time, get the staff etc.. I get this. They cant do it next week bc the endoscopy guy is away again - he was away last week when i had my last procedure which was carried out. Im needed to goto clinic on friday so they can tell me whether theyre gonna be arsed to glue me, clip me or just leave me. I have a feeling theyre pushing for the latter.
Having had a paddy a member of my surgical team came down to talk to me, my surgeon was conveniently unavailable. His superior who is a medical director at the hospital isnt available. I am now having to make do with being promissed a phone call on wednesday to tell me what theyre gonna do and when theyre gonna do it.
I get home and get a phone call from a friend of mine, made through this horror who also has a leak. She has been asked to goto hospital on wednesday morning to have her stents removed in theatre by the endoscopy team. Quite ironic as I was told there was no theatre space for endoscopy this week and it takes time as the equipment has to be taken to theatre, anaethatists arranged etc.. Im totally hacked off.
I had to have a new canular this morning at 5am. Theyve taken it out, and it turns out they do actually have theatre space, and the endoscopy equipment. Is it me being a selfish moose or would it have been more sensible to keep me an extra day or two when they have the equipment there to do the clipping which Ive been told by my team only takes a few minutes to do??
Not sure what to think anymore other than this is another delay tactic to allow it to heal naturally and consequently prolonging the end to this nightmare.
Im at breaking point and cant do this for another week let alone another 2 weeks to wait for this guy to come back, and thats IF he agrees to do this. If he declines it means I could be left like this for another month, 6months, year. They Dont know.
It also means Im starting month 4 of being fed through the NJ tube which makes me ill. Since last week Ive tried to put up with it, and the diaohrea that the feed gives me. On discharge today the dieticien tells me not to take the peptisorb which has the same effect but not as severe, and to return to the original protein plus I was on.
Ive been home 20 minutes and I cant seem to stop the tears. All I can do is sit and wait for the alleged telephone call Im supposed to receive wednesday and take it from there.
I was told last week that I would be advised today of what the next step would be with regards to sealing the leak off and getting me home drinking.
Today I was woke up by a member of the team and 2 jr doctors behind him like ducklings asking me why I was still in the hospital, I should be at home. Despite being told Friday that I would learn my fate with regards to gluing and clipping today Ive been discharged despite my protest, and told they will see me in outpatients in a few weeks. Needless to say I went off like a rocket.
Ive been told that the endiscopy guy cant do it this week because it takes time to plan this procedure - it has to be done in theatre. They have to book theatre time, get the staff etc.. I get this. They cant do it next week bc the endoscopy guy is away again - he was away last week when i had my last procedure which was carried out. Im needed to goto clinic on friday so they can tell me whether theyre gonna be arsed to glue me, clip me or just leave me. I have a feeling theyre pushing for the latter.
Having had a paddy a member of my surgical team came down to talk to me, my surgeon was conveniently unavailable. His superior who is a medical director at the hospital isnt available. I am now having to make do with being promissed a phone call on wednesday to tell me what theyre gonna do and when theyre gonna do it.
I get home and get a phone call from a friend of mine, made through this horror who also has a leak. She has been asked to goto hospital on wednesday morning to have her stents removed in theatre by the endoscopy team. Quite ironic as I was told there was no theatre space for endoscopy this week and it takes time as the equipment has to be taken to theatre, anaethatists arranged etc.. Im totally hacked off.
I had to have a new canular this morning at 5am. Theyve taken it out, and it turns out they do actually have theatre space, and the endoscopy equipment. Is it me being a selfish moose or would it have been more sensible to keep me an extra day or two when they have the equipment there to do the clipping which Ive been told by my team only takes a few minutes to do??
Not sure what to think anymore other than this is another delay tactic to allow it to heal naturally and consequently prolonging the end to this nightmare.
Im at breaking point and cant do this for another week let alone another 2 weeks to wait for this guy to come back, and thats IF he agrees to do this. If he declines it means I could be left like this for another month, 6months, year. They Dont know.
It also means Im starting month 4 of being fed through the NJ tube which makes me ill. Since last week Ive tried to put up with it, and the diaohrea that the feed gives me. On discharge today the dieticien tells me not to take the peptisorb which has the same effect but not as severe, and to return to the original protein plus I was on.
Ive been home 20 minutes and I cant seem to stop the tears. All I can do is sit and wait for the alleged telephone call Im supposed to receive wednesday and take it from there.
lamornamiss
wants to be a loser
Hi Scooter I think its time to see a solicitor about medical negligence.
I know things can go wrong with surgery but the way you have been messed about since surgery beggars belief.
Write everything that has happened/not happened down and find a solicitor now
I know things can go wrong with surgery but the way you have been messed about since surgery beggars belief.
Write everything that has happened/not happened down and find a solicitor now
chrisa
New Member
I totally agree ladies absolutely disgusting. I said the other day they wouldn't do that to an animal people would call in the RSPCA so why is it allowed to continue for Scooter just not right, you need legal advice like has already been said and hopefully you can get it free either that or you go public as suggested, time for action just not acceptable like this. So sorry for you Scooter you must be devastated. xx
girlygirl1
New Member
I agree 100%. Scooter I read this thread with increasing shock and horror, and total sympathy with and love for you - a very brave and fair woman who has been treated very badly and is still being given improper, inadequate care.
You do need to find a solicitor that specialises in medical negligence. Perhaps the Citizen's Advice Bureau would be able to advise you? You may already have a solicitor but as you will know the need here is for one expert in medical negligence and mistakes - and as soon as humanly possible.
You must be devastated as well as physically weak and you may even be feeling mentally fragile - I certainly would be. Please get legal advice as a matter of urgency.
I agree with others that a pending lawsuit might finally galvanise them into action. And since you are not the only patient in your particular time-frame to have a leak they seem unable to fix, others might be interested in joining you in a class action suit.
How courageous and strong you are! Stand firm and get help, please. You have been forced to endure endless useless surgical procedures and yet you still cannot eat or drink properly. It's crazy.
I would like to add to that of others here my love, blessings and tons of luck xx
You do need to find a solicitor that specialises in medical negligence. Perhaps the Citizen's Advice Bureau would be able to advise you? You may already have a solicitor but as you will know the need here is for one expert in medical negligence and mistakes - and as soon as humanly possible.
You must be devastated as well as physically weak and you may even be feeling mentally fragile - I certainly would be. Please get legal advice as a matter of urgency.
I agree with others that a pending lawsuit might finally galvanise them into action. And since you are not the only patient in your particular time-frame to have a leak they seem unable to fix, others might be interested in joining you in a class action suit.
How courageous and strong you are! Stand firm and get help, please. You have been forced to endure endless useless surgical procedures and yet you still cannot eat or drink properly. It's crazy.
I would like to add to that of others here my love, blessings and tons of luck xx
lamornamiss
wants to be a loser
Sorry but I don't think going public will do anyone any favours.
You just give the critics ammunition to slag "us fat lazy people" off
chrisa
New Member
Yes, I understandthat, it wouldn't be my first choice either but the options are getting fewer. Personally i think i would demand to be transferred to another hospital and consultant/surgeon, wonder what her gp thinks? XX Hard professional advice is what is really needed but its gettin it thats the problem and it could be costly. xx
angeeb
New Member
I'm quite prepared to be called fat and lazy if it gets scooter the result she so desperately needs!
