-
Hi, If you cannot get into the site, be sure to Contact Us. Please be advised that the app is no longer in use!
Leaking like the Titanic..
- Thread starter scooter81
- Start date
-
- Tags
- leak sleeve gastrectomy stent
scooter81
Walking Disaster Area
i just want to get on with my life without being lied to. tomorrow im taking legal advice, wednesday im waiting for the call. thursday im taking the suitable action necessary, whether its addressing this via legal routes are publicly.
press is not my ideal but if it means people get shaken up and start doing the job and giving people the treatment that u, i and everyone else work so dam hard for and deserve to get then so be it. besides any backlash would be directed at me as they did with georgia davis
press is not my ideal but if it means people get shaken up and start doing the job and giving people the treatment that u, i and everyone else work so dam hard for and deserve to get then so be it. besides any backlash would be directed at me as they did with georgia davis
Sharonimo
Sleeve to Bypass
This is rubbish and sounds like an outright lie.
12 days ago on the 30th May I contacted the Whittington because I suspected a small problem with my sleeve / possible leak (I was being a hypochondriac probably) having developed left should / left side pains (and pains inside the sleeve) -- but no fever and no sickness.
On Thursday 31st May they whipped me in for an endoscopy carried out by Mr Sufi himself (there is no separate specialist "endoscopy guy" at the Whittington -- each surgeon or clinician does their own) ..... they squeezed me into all their existing appointments and by the time I got seen they were running 2 hours late due to the number of extra appointments they had slotted into the day's bookings.
For me the result was I have severe gastritis, not a leak but the Whittington was really quick to take action and book me an appointment (followed up by an Xray and barium swallow test).
Last edited:
Sharonimo
Sleeve to Bypass
If you do decide to shame them with media coverage of their appalling lack of care and poor treatment, you ideally need a consumer rights type programme like Watchdog or Tonight, rather than the gutter press.
Ideally a medical negligence claim / win and negative coverage on a consumer rights programme and shame their lilly livered arses !!!
Hope you found some of the links I posted a few pages back useful, Scooter -- re medical negligence. (I realise you are using a different local law firm close to you but there was lots of useful links on the info including organisations such as the AvMA, Action against Medical Accidents.)
Evenstarr
New Member
No we do not!
We deserve the same respect that every other patient receives.
We do not deserve to be judged because of our size, but sadly we are.
I'm lucky in that I've never been on the receiving end of abuse because of my size, but there's plenty on here who have.
But I find that the judgemental and abusive type of people are the sort of people I'd not want to associate with anyway.
Lots and lots of luck lovely, really do hope things start to take an upturn for you very soon, hang on in there.
Em xxxxxx
scooter81
Walking Disaster Area
Congratulations on the weight loss Sharonimo Im so glad that you dont have a leak, I wouldnt wish it on my worst enemy.
Everytime the team mentions endoscopy, they refer and send me to a separate department. The stent removal itself took place last week and was conducted by my original surgeon and his superior, however they chose not to glue or clip the leak.
I suspect that this is also a blatant lie and having spoke to someone who called me to tell me her Stent was being removed on Wednesday am adamant that it is.
I cant be seen tomorrow in endoscopy because there are 16 emergency appointments and prebooked appointments. I called and asked if they could do this Wednesday after my friends Stents were removed in theatre - the equipment would already be there, and the anaethatists, the surgeons etc.. but was told they had no clue what I was on about and someone would call me back tomorrow. I had also been told earlier in the day someone would call me Wednesday to let me know the plan for clipping.
With regards to media talks, you hit the nail on the head. Its not something Id want released or to challenge through gutter press, we all know the likes. Its not something to be taken lightly either because that ball starts rolling theres no telling where it will go, which is why I am consulting my solicitor tomorrow.
The links you posted were very helpful indeed and made me determined to do something about it. My intention was to wait to become well again and then pursue things however due to the recent developments or lack of, this has moved forward. I think its important to also give them the chance to do as they said they would. Everything else, promises, times dates, who i spoke to, when, where etc.. has already been recorded by me, and will be going to the appointment with me tomorrow. Its not an easy decision to make. I dont want financial compensation (though dam it would help) I just want to be fixed and get on with life. Return home, to my house without the fear of filling up with fluid and having my insides rotting away again. No fear of vomiting blood and ending up critically ill again. I want to go back to work and just do the regular things I used to take for granted. A "sorry we messed you about" would also be nice, but is doubtful.
Im so glad that you dont have a leak, I wouldnt wish it on my worst enemy.Everytime the team mentions endoscopy, they refer and send me to a separate department. The stent removal itself took place last week and was conducted by my original surgeon and his superior, however they chose not to glue or clip the leak.
I suspect that this is also a blatant lie and having spoke to someone who called me to tell me her Stent was being removed on Wednesday am adamant that it is.
I cant be seen tomorrow in endoscopy because there are 16 emergency appointments and prebooked appointments. I called and asked if they could do this Wednesday after my friends Stents were removed in theatre - the equipment would already be there, and the anaethatists, the surgeons etc.. but was told they had no clue what I was on about and someone would call me back tomorrow. I had also been told earlier in the day someone would call me Wednesday to let me know the plan for clipping.
With regards to media talks, you hit the nail on the head. Its not something Id want released or to challenge through gutter press, we all know the likes. Its not something to be taken lightly either because that ball starts rolling theres no telling where it will go, which is why I am consulting my solicitor tomorrow.
The links you posted were very helpful indeed and made me determined to do something about it. My intention was to wait to become well again and then pursue things however due to the recent developments or lack of, this has moved forward. I think its important to also give them the chance to do as they said they would. Everything else, promises, times dates, who i spoke to, when, where etc.. has already been recorded by me, and will be going to the appointment with me tomorrow. Its not an easy decision to make. I dont want financial compensation (though dam it would help) I just want to be fixed and get on with life. Return home, to my house without the fear of filling up with fluid and having my insides rotting away again. No fear of vomiting blood and ending up critically ill again. I want to go back to work and just do the regular things I used to take for granted. A "sorry we messed you about" would also be nice, but is doubtful.
snack
New Member
Hi scooter gave just been reading your post and must say what a brave lady you are , can't believe that in this day and age where we can put a man on the moon that this crap has happened too you , keep your chin up and fight for what is right for you , sending you all my love and best wishes kez xxxxxx
suzie290304
Member
Hi so sorry to hear about you leak, is their not any other bariatric hospital near where you are ? As If their is I would phone them tomorrow and ask them to treat you due to yours being rubbish. Hope you feel better soon x
chrisa
New Member
Yeah think you have made the right decision for you I know its easy for us all to comment but its your life and you who is suffering and has been left to suffer, so the decision is definitely yours. I hope the solicitor takes all the info and it may be he even passes you over to a colleague things need to be and have to be put right ASAP. God Bless You, may you get some joy when you see your solicitor, or at least light at the end of the tunnel. xx
lamornamiss
wants to be a loser
No we do not! BUT unfortunately we are
If you do decide to shame them with media coverage of their appalling lack of care and poor treatment, you ideally need a consumer rights type programme like Watchdog or Tonight, rather than the gutter press.
Ideally a medical negligence claim / win and negative coverage on a consumer rights programme and shame their lilly livered arses !!!
I meant the gutter press kind of publicity where every man and his dog likes to pass comment on things that they don't understand or even want to understand.
If you could get it on a consumer type or medical programme that would be the best way to go.But even then someone will always say that "You knew the risks. You did this to yourself"
scooter81
Walking Disaster Area
Ive received a call today from the hospital as prommised. I have been advised that they do not have the glue and clips in stock to glue and clip me this week and again, the endoscopy guy that would do the repair work is not in next week. I asked why the other endoscopy guy / my surgical team cant do this and Ive been told "because Dr M has to do this..".
They have also come up with a new plan.. give me another swallow test. If the swallow test shows the leak site is the same as a month ago when I had my last test or smaller (they reckon its alot smaller) then they plan to re-admit me into hospital for a few days. Whilst readmitted they aim to start me off on 30mls water sips and gradually increase this over a few days/week or so and have another swallow test to ensure not making the leak worse. Once confident that all is fine they will look at allowing me to have clear soups and start my fluid diet all over again and ween me off the NJ feed (hopefully I can then have a day without the poops). I would also be required to attend clinic every friday until further notice.
If the swallow test shows the leak has worsened Ill remain nil by mouth and will await a date to be glued and clipped, if it is significantly worse then I will have the operation I should have had last week; open surgery to sew loop of bowel to the leak site.
The surgeon who called advised he was going to book my swallow test hopefully for this coming Friday (15th June) or Monday (18th June) and will call me back tomorrow to confirm the date and time Im required to attend. I hope its Friday as the Weight Loss Clinic is running and it means the surgical team will have the images within minutes to stop me stewing over everything and waiting anxiously.
I just need this to end, not had a particularly good day today. Saw solicitor who has taken copies of everything I have info-wise and advised that I have more than a strong case for medical neglicence. However they are also of the opinion that we need to be seen to give them a chance to rectify everything. I have to call her back by The end of next week to instruct her further. So this should give ample time and opportunity for the call I should receive tomorrow, a swallow test and hopefully some progress.
They have also come up with a new plan.. give me another swallow test. If the swallow test shows the leak site is the same as a month ago when I had my last test or smaller (they reckon its alot smaller) then they plan to re-admit me into hospital for a few days. Whilst readmitted they aim to start me off on 30mls water sips and gradually increase this over a few days/week or so and have another swallow test to ensure not making the leak worse. Once confident that all is fine they will look at allowing me to have clear soups and start my fluid diet all over again and ween me off the NJ feed (hopefully I can then have a day without the poops). I would also be required to attend clinic every friday until further notice.
If the swallow test shows the leak has worsened Ill remain nil by mouth and will await a date to be glued and clipped, if it is significantly worse then I will have the operation I should have had last week; open surgery to sew loop of bowel to the leak site.
The surgeon who called advised he was going to book my swallow test hopefully for this coming Friday (15th June) or Monday (18th June) and will call me back tomorrow to confirm the date and time Im required to attend. I hope its Friday as the Weight Loss Clinic is running and it means the surgical team will have the images within minutes to stop me stewing over everything and waiting anxiously.
I just need this to end, not had a particularly good day today. Saw solicitor who has taken copies of everything I have info-wise and advised that I have more than a strong case for medical neglicence. However they are also of the opinion that we need to be seen to give them a chance to rectify everything. I have to call her back by The end of next week to instruct her further. So this should give ample time and opportunity for the call I should receive tomorrow, a swallow test and hopefully some progress.
Sharonimo
Sleeve to Bypass
Both of these things sound rather pathetic: they don't have the glue and clips necessary to fix your leak -- how long have they known you have a leak, FFS?
And from some of the info contained on some of your previous posts (about *other* patients having their stents removed etc) it sounds like you are not the only patient from Walsall Manor to end up with leaks -- not good.
chrisa
New Member
Scooter so pleased something is happening even if its just promises, pleased the solicitor is on your case and rightly so. Hope you get a date for your swallow test and further treatment still find it unbelieveable that they can leave you like this, think because its NHS couldn't give a toss some of them, if you were private wonder if it would have been a different story? It wasn't a n option for me to go private but I will say that SRH were brilliant. Keep us posted luvva and keep your chin up xx
Caren
Love my sleeve!!
good luck Scooter
xxx
chrisa
New Member
My goodness they have offered you some help finally lets hope they decide you need it closing then. xxstay strong n positivexx
Tandydadder
Member
Every time I come back to this thread my jaw hits the floor yet again...... I work for the NHS and honestly this is atrocious. Our hospital has a critical incident team which meets every week, and disatisfactory outcomes (however minor) are examined and discussed. Each professional involved is asked to write a few pages of reflection describing what they could have done different, and if this was impossible what contributed to this. eg a minor incident could be something like incorrectly labelling a chart. A major incident would be haemorrhage. Ultimately, major incidents like haemorrhage are often unpreventable, but the incident group examines the case to make sure correct treatment measures are taken. I am STUNNED that you have suffered as long this. Good luck for Monday Scooter, and stick with the case. It'd be nice to get loss of earnings back at least.... Xo
