Hello everyone. Thank you so much for thinking of me.
Tassie, how are you doing?
I have been lurking on the boards these last couple of weeks, I just didn't have the strength to tell the rest of my story. Its been a whirlwind and it is not yet over, although it looks like there might be some much awaited light at the end of this very, very long tunnel!
I went for the third PPY gut hormone test which again was not without event. There were a lot of cloak and dagger type shenanigans from my team and by the time I was allowed to leave I could have ran if my body would have let me.
That very evening I vomited my NJ tube out for the third time had to be readmitted on the Monday. At this point my new Surgeon decided that a Diagnostic Laparoscopy was needed. But this was after he marched into my room and was so incredibly rude to me that I had to put him in his place.
Again, more shocking facts were uncovered regarding my care.
Then laparoscopy showed that my Sleeve was covered in a massive amount of adhesions (something they had never seen before) and it was thought that these were causing my stomach to kink and twist and causing all my symptoms. The adhesions were removed (along with my feeding tube that I had been given the day before) and I was told I could go home and would be fine. Well, I was not fine. I still cannot eat and can only keep down thing fluid. Coconut water is the new wine, don't you know.
I have lost 5lb since last Wednesday and I am 8 stone today.
Last week I went to see my surgeon who assured me that my Sleeve was "perfect" and insisted that all I needed was more time.
Nope, I don't think so. Whilst all this was going on, I had been working away to see to see if I could get an urgent referral to see another surgeon who came highly recommended by a lovely lady on this forum. I had an endoscopy at the new hospital yesterday and it appears that the Sleeve is not "perfect" after all. It is kinking and narrowing in two places and he had to force the endoscope through. My oesophagus is eroded and dilated also. I have a Barium Swallow tomorrow and I will see the surgeon again next Wednesday to decide on the best course of action. Although, yesterday he felt that a Bypass was the best way to go. We will see.
